The Star Online: Metro: Central
The Star Online: Metro: Central |
| Malaysia Lysosomal Diseases Association aims to help LSD patients Posted: 19 Oct 2011 05:34 AM PDT COMPRISING parents and families of patients, the newly-formed Malaysia Lysosomal Diseases Association (MLDA) aims to bring public attention to Lysosomal Storage Diseases (LSD). "The launch marks an important milestone in the struggle to bring public awareness and attention to this debilitating disease," said MLDA president Lee Yee Seng in his opening remarks. He made a moving appeal to the public to acknowledge the right of every child to have equal access to treatment no matter what their medical condition. He also highlighted the despair and desperate circumstances families with LSD sufferers faced. Currently, treatment costs between RM300,000 and RM1mil. "The association hopes to be able to partner the government, the corporate sector and the community to create a much more caring health and medical environment. "All LSD patients should be able to benefit from the latest medical treatment," said Lee. Also speaking at the launch was the Taiwan MPS Society founder and president Virginia Tsai. MPS is one of the many types of LSD. She too spoke of the importance of partnerships and how by working together, LSD advocacy groups would be able to accomplish much more. She reiterated Lee's call for early diagnosis as it enabled a more comprehensive and effective treatment. However, the launch truly belonged to the LSD children who courageously took the stage to tell their stories and share their hopes and dreams. Full content generated by Get Full RSS. |
| Scoliosis patient goes on to become professional golfer Posted: 19 Oct 2011 05:32 AM PDT SHE is no ordinary golfer. Stacy Lewis, 26, is a professional golfer and a star on the LPGA Tour and has an incredible record of achievement and has done it after overcoming the effects of progressive scoliosis. Lewis, who was in town for the Sime Darby LPGA Malaysia recently, had taken time off her game and met Scoliosis patients, especially children, to share her experiences. Her words of encouragement and an insight into the condition was an inspiration to the children and their parents. At the age of 11, during a school screening exam, it was discovered that Lewis had a deformity. Following visits to a paediatric spine deformity specialist and the ensuing x-rays confirmed the diagnosis of scoliosis, an excessive rotational deformity of the spine. ● Full story read Star Metro Central today. Full content generated by Get Full RSS. |
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